New Book –
How to Live Better with Lymphoedema

How to Live Better with Lymphoedema – Meet the Experts by Matt Hazledine

This book is for anyone who has, or loves someone who has, lymphoedema, a chronic and often debilitating lifelong disease that can have a detrimental effect on both physical and mental wellbeing. I wish I’d had a book like this when I was diagnosed with lymphoedema 10 years ago.

Matt Hazledine, founder of Lymphoedema United, shares his personal experiences and useful tips, plus authoritative information and guidance from over 20 medical professionals and experts, will help you to live better with lymphoedema.

With lymphoedema, knowledge is power and you will learn about:

• Finding the right therapist
• Help and support networks
• Self-management techniques
• Therapies, products & surgery
• Research to find a cure

Whether you read the whole book in one go or turn to certain chapters that focus on specific subjects, this is a must have lymphoedema bible that can be referred to again in the future, when needed. 25% of the profits will be donated to the Lymphoedema Research Fund.

Meet the Experts

I am honoured to have been supported by over 20 experts, who write about specific subjects that are important to people living with lymphoedema, alongside my personal experiences of each subject in the same chapter.

It is my pleasure to introduce you to the experts and their subjects, in order of appearance:

Prof. Peter Mortimer MD, FRCP                                                 Foreword

Kelly Nickson, Lymphoedema Clinical Nurse Specialist             Ch 2       Help! I need somebody

Dr Kristiana Gordon MBBS, CLT, MD(Res) FRCP                      Ch 3       What is Primary Lymphoedema?

Prof. Vaughan Keeley PhD, FRCP                                              Ch 3       What is Secondary Lymphoedema?

Prof. Christine Moffatt CBE                                                          Ch 4       How common is Chronic Oedema?

Martina Sykorova Bc., Mgr, MA, MRes                                        Ch 4       How common is Chronic Oedema?

Margaret Sneddon Chair, British Lymphology Society                 Ch 5       Find the right kind of Therapist

Gaynor Leech, Founder of L-W-O Community                             Ch 6       Mental Wellbeing & Support Groups

Chair, Lymphoedema Support Network                                        Ch 7       Patient Support

Tom Wright, Director, Haddenham Healthcare                             Ch 8       Compression Garments, Products & Aids

Mark Pearson, MLD Therapist & Clinic Coordinator                     Ch 9       The Importance of Properly Fitted Compression Garments

Prof. Vaughan Keeley PhD, FRCP                                                Ch10      Cellulitis & Lymphoedema

Prof. Christine Moffatt CBE                                                           Ch10      Cellulitis & Lymphoedema

Kelly Nickson, Lymphoedema Clinical Nurse Specialist               Ch11      Skin Care

Rebecca Elwell Msc Lymphoedema                                             Ch12      Healthy Lifestyle

Patryk Gawrysiak (MSc Physiotherapy), CSP                              Ch13      Decongestive Lymphatic Therapy,                                                                                                                                                                                                                                  (DLT) Multi-Layer Lymphoedema
                                                                                                                    Bandaging (MLLB) & Compression
                                                                                                                    Wrap Systems

Carol Ellis MSc, BSc, PGCert, FHEA, Chair of MLD UK               Ch14      Lymphatic Drainage Techniques

Clare Anvar BSc (Hons), MSc, MLD/Clinical Massage                  Ch14      MLD & Kinesiology Tape

Sally Kay, Reflexology Practitioner, Author, Tutor                          Ch14      Reflexology Lymphatic Drainage

Jane Wigg MSc, RGN Nurse Consultant, LymphVision                 Ch15      Lymphofluoroscopy Guided Manual Lymphatic Drainage & Self-Lymphatic Drainage

Elizabeth Radcliffe, Master Tailor. Levi’s Lot 1                                Ch16      Clothes & Shoes

Naomi Northen-Ellis, Director, Compression Therapy UK               Ch17      Pump Down the Volume – Pneumatic Compression Pumps

Prof. Dominic Furniss DM MA MBBCh FRCS (Plast)                      Ch18      Lymph Node Transfer (LNT)

Prof. Dominic Furniss DM MA MBBCh FRCS (Plast)                      Ch19      Lymphovenous Anastomosis (LVA)

Prof. Dominic Furniss DM MA MBBCh FRCS (Plast)                      Ch20      Liposuction in Lymphoedema

Dr Julian Pearce MBChB, BSc (Hons) MRCP                                 Ch21      Lymphatics & the Immune System

William Repicci, President & CEO of LE&RN                                  Ch22      Global Awareness: Lymph in the USA

Prof. Peter Mortimer MD, FRCP                                                      Ch24      A Cure? – Research & Funding   

Amerjit Chohan, CEO of St George’s Hospital Charity                    Ch25      St George’s Hospital Charity – Lymphoedema Research Fund

“I have known Matt for almost ten years now and can honestly say, I regard him as a compliant patient with the drive to make a positive contribution by helping others with lymphoedema.”

Professor Peter Mortimer MD, FRCP – Professor of Dermatological Medicine

“The fact that Matt lives with lymphedema (LE) was of particular interest to me. I am always looking for the leaders who will forge the changes needed before LDs and LE become global priorities.”

William Repicci – President & CEO, Lymphatic Education & Research Network (LE&RN)

After having a severe episode of cellulitis in June 2011 that hospitalised me for two weeks, I was left with lymphoedema in my leg, which was 56% bigger than my right leg. Since then, I have experienced almost every product, therapy and surgery available to me, bringing my leg swelling down to 17% volume. In this book, to mark exactly 10 years with this condition, I share my journey with the aim of helping you to live better with lymphoedema.