LymphUnited eNewsletter
Volume 14
January 2025
LymphUnited eNewsletter
Volume 14
January 2025
Volume 14 – January 2025
Welcome to our fourteenth LymphUnited Newsletter, which includes a variety of subjects that aim to share experiences and help you to live better with lymphoedema.
Having lymphoedema can be a lonely place sometimes and I am passionate about uniting the lymphoedema community, both online and in person. You are NOT alone!
This issue includes a variety of articles including ‘Spotlight on Lymphoedema and Men, BBC Future – Lymphoedema, NHS Support for Mental Wellbeing plus details of our 2025 Charity Golf Day.
I hope you find this interesting and informative. Most importantly, I hope there will be something that you find beneficial to improve your quality of life.
Ultimately, this newsletter is for your benefit. Therefore, I welcome your feedback or any requests you have for future content.
Contact Matt at Hello@lymphunited.com.
Spotlight on Lymphoedema and Men:
Understanding the Journey, Disruptions and Impact on Masculinity
By Dr Garry Cooper
Introduction:
Lymphoedema, a chronic condition that causes swelling, can significantly disrupt a person’s life. While it’s commonly associated with women, many men also live with lymphoedema, facing unique challenges in coping with the condition. This post shares insights from a recent study exploring how men experience lymphoedema, focusing on the disruptions it causes, their journey to adapt, and how it affects their sense of masculinity.
Background
Men’s Health Challenges:
Men often face significant health challenges, with shorter life expectancies and lower rates of seeking help compared to women. This can be linked to societal expectations of masculinity, which may lead men to avoid help for health issues and experience higher risks of conditions like heart disease and social isolation.
In the UK, there has been a growing push to improve men’s health. The government has launched initiatives to address these health inequalities and provide more support for men, including a focus on tackling social isolation and gender-insensitive services.
Support for Men with Lymphoedema:
For men with lymphoedema, especially those with non-cancer-related lymphoedema, support can be limited. While men with cancer-related lymphoedema often have more regular healthcare contact, those with non-cancer-related lymphoedema may not receive the same level of care. This lack of support can lead to emotional challenges, such as concerns about body image and isolation.
It’s important for healthcare services to offer tailored support for men with lymphoedema, addressing both physical and emotional needs. With the right care, men can better manage their condition and improve their overall wellbeing.
Masculinity:
Masculinity refers to the traits and roles society expects men to display, such as being strong, independent, and confident. These expectations can differ across cultures and change over time. The idea of hegemonic masculinity describes the ideal version of being a man. For example, a man might feel he needs to provide for his family through work, excel in sports, or take on a leadership role as a father. When men cannot meet these expectations—such as losing the ability to work or play sports due to illness—they may feel their sense of identity or social status is at risk. In such cases, they might adopt other ways of expressing masculinity, like becoming more nurturing at home or supporting others emotionally.
The HIMM framework helps us understand how masculinity can change over a man’s life, especially when facing challenges like illness. For instance, a man with lymphoedema, a condition that can limit physical activity, might no longer be able to engage in physically demanding hobbies. Instead, he might focus on building relationships, volunteering, or finding new ways to stay independent, like adapting his daily routine to manage the condition.
These ideas show how conditions like lymphoedema can challenge traditional views of masculinity and highlight the need for support and care that recognizes and respects these changes. For example, providing tailored advice on managing the condition or connecting men with peers who share similar experiences can help them adapt and feel more confident in their new roles.
Study Purpose:
The study explored how men with lymphoedema experience their condition and how it affects their identity and roles as men.
How the Study Was Done:
The researchers interviewed 12 men from the UK and Ireland who had lymphoedema not related to cancer. The interviews were done online to make it easy for participants to take part from wherever they lived. The men shared their personal stories about living with lymphoedema, including how it impacts their daily lives, access to healthcare, and their sense of being a man.
Who Took Part:
Twelve men participated who represented a variety of experiences, such as different ages, educational backgrounds, and lengths of time living with lymphoedema. They were chosen because their insights could help us understand the condition better.
What Happened During the Interview:
Each interview lasted between 45 minutes and 1.5 hours. The men talked about their experiences in their own words. The researchers made sure their stories were recorded and kept securely, following strict privacy rules.
Analysis
How the Stories Were Used:
The researchers studied the men’s stories to find common themes and deeper meanings. They looked at how the men described their experiences and worked to understand how lymphoedema affected their sense of identity. To ensure the findings were accurate, the team regularly discussed their analysis and even shared some of the early results with the men who took part.
What the Study Found:
The study showed how lymphoedema disrupts men’s lives and their sense of what it means to be a man. It also highlighted ways they adapt to these changes and what support could help them.
Findings
Three finding from the 12 interviews indicates 3 parts to the stories that men tell themselves. Each one represented a chapter in their lives filled with thoughts, emotions and meaning.
Part 1: The Disruption – ‘It Came From Nowhere’
For many men, lymphoedema appeared suddenly, with little warning or preparation. As one participant described, ‘It came from nowhere without warning,’ reflecting the shock of suddenly being diagnosed with a condition many had never heard of before. This initial disruption often involved hospital visits, multiple tests, and uncertainty about the condition’s future impact. Many men expressed frustration at the lack of immediate understanding from healthcare professionals. This part of the journey emphasizes how the onset of lymphoedema creates a sense of vulnerability and confusion, often worsened by a lack of clear guidance from medical services.
Part 2: The Journey – ‘Trying to Live Normally’
As men adjusted to their new reality, they found ways to adapt to lymphoedema while trying to maintain a sense of normalcy. For some, this meant pushing through physical limitations, sometimes to their own detriment. For others, it meant redefining what ‘normal’ looked like for them. As one participant said, ‘It’s taken 11 years to get here,’ underscoring the gradual process of adaptation.
However, this journey wasn’t easy. Many men experienced loss, whether of physical abilities, hobbies, or social roles. They often tried to ‘keep going’ by seeking support from loved ones or relying on self-reliance, which sometimes led to further emotional and physical strain. Despite these challenges, a few men found empowerment through education and reliable information from specialists, which helped them regain control over their condition.
Part 3: Masculinity – ‘I’ve Lived With It All My Life’
Lymphoedema didn’t just affect men physically; it also impacted their perception of masculinity. For many men, the condition clashed with traditional views of what it means to be a man, to be strong, independent, and physically capable. As one participant shared, putting on compression stockings every day was ‘incredibly embarrassing.’ While some men found ways to manage the condition privately, others felt the pressure to hide their struggles, masking their condition with clothing or avoiding certain activities. This reluctance to share their experiences could lead to feelings of isolation and invisibility, especially since few support groups are available specifically for men with lymphoedema.
Conclusion:
This study highlights the complex journey men with lymphoedema face, from the initial disruption to their long-term adaptation. It’s clear that men’s experiences of lymphoedema are shaped by their perceptions of masculinity, their search for control, and their need for emotional support.
By understanding the unique challenges men face in living with lymphoedema, we can create more inclusive support systems and encourage open discussions about the impact of chronic conditions on men’s health and identity.
Call to Action:
Let’s take action together to support men with lymphoedema:
- Educate Yourself and Others: Share this blog with friends, family, and colleagues to raise awareness about lymphoedema in men. Knowledge is the first step towards empathy and support
- Join or Support Groups: If you or someone you know is affected by lymphoedema, consider joining a support group. These communities provide invaluable emotional support and practical advice.
- Advocate for Better Healthcare: Reach out to local healthcare providers and policymakers to advocate for more inclusive and gender-sensitive healthcare services. Your voice can help bring about necessary changes.
- Get Involved: Participate in or support organizations dedicated to lymphoedema research and support. Your involvement can make a significant difference in the lives of those affected.
- Open the Conversation: Encourage open discussions about men’s health and the impact of chronic conditions like lymphoedema. Breaking the silence can reduce stigma and promote a more supportive environment.
Together, we can make a difference in the lives of men living with lymphoedema. Thank you for reading and for your commitment to supporting this important cause.
For further information about Dr Garry Cooper and our panel of lymphoedema experts, visit https://lymphoedemaunited.com/meet-the-experts/
Lymphoedema:
The ‘hidden’ cancer side-effect no one talks about
By Katherine Wang, Ph.D
Katherine Wang is a research fellow at University College London in the UK who’s work focuses on developing wearable devices to alleviate the pain and swelling caused by lymphoedema while allowing patients to self-manage their condition. Her work is inspired by the experience of her uncle’s condition. She wrote this article for BBC Future website in December 2024. We are grateful to Katherine for allowing us to share this with you.
Patients who beat cancer can be left with an incurable, chronic and painful condition. Sufferers and doctors alike are fighting to bring this hidden condition to light.
During a visit to the oncologist to discuss his cancer treatment, my late uncle gestured to his legs – both limbs had swollen to around three times their normal size. He was fatigued, in pain, and unable to move normally because of the excessive swelling
“Oh, that’s lymphoedema, there’s nothing we can do about that, I can tell you that much,” the clinician said in response, dismissing my uncle’s pain and concerns.
I remember being shocked at the blasé attitude of the doctor to something that was causing my uncle so much discomfort and serious mobility issues. Lymphoedema can often occur in patients with cancer or who are undergoing cancer treatment. I couldn’t believe there wasn’t anything the doctor could do to alleviate my uncle’s pain.
What happened to my uncle wasn’t unique. Lymphoedema is an incredibly common condition, which affects 250 million people globally. In the UK, 450,000 individuals have lymphoedema, while in the US there are as many as 10 million people suffering from the condition.
Despite this, it remains a “hidden disease” – one that gets little attention, has been underresearched and underdiagnosed.
“They wake up every single morning with a reminder of their cancer journey, because their lymphoedema is staring them in the face” – Matt Hazledine
Lymphoedema is a chronic, incurable condition that causes excessive swelling due to a damaged lymphatic system, a network in the body responsible for maintaining fluid balance in tissues. It occurs when lymph fluid is unable to properly drain from the body, due to a dysfunction or injury to the lymphatic system.
The lymphatic system is a network of glands and vessels that forms part of our body’s circulatory system. It plays a vital role in whisking away excess fluid and proteins that leak out of tissues, filtering it and returning the fluid back to the bloodstream. It is vital for immune function, waste removal, and maintaining the right fluid balance in your body. It also serves as a key line of defence against diseases, continuously circulating white blood cells known as lymphocytes that hunt out viruses, bacteria, fungi and parasites. If you’ve ever been sick, and felt a mysterious bump on your neck, it’s most likely your lymphatic system helping you fight an infection.
“The lymphatic system is a very complex system,” says Kimberley Steele, a former bariatric surgeon at John Hopkins University in Baltimore, US, and programme manager for the lymphatic research programmes at ARPA-H, a US federal government health agency.
“It permeates every organ and tissue, and as surgeons, we can’t see it because the lymphatic vessels are translucent. It’s not until you are really affected that you appreciate how much it does for you.”
Dysregulation of the lymphatic system has been shown to be a key characteristic in many chronic disorders, such as heart failure, Alzheimer’s disease, inflammatory bowel disease and cancer.
A Silent Pandemic
“Lymphoedema can affect anyone, and doesn’t discriminate on gender, age, ethnicity, or socioeconomic status,” says Karen Friett, chief executive at the Lymphoedema Support Network, a non-profit in the UK.
The condition is a common consequence of certain cancers and the treatments for them, such as surgery or radiotherapy, as the lymph nodes can be damaged or removed. For example, one in five women treated for breast cancer are affected by lymphoedema while between 2-29% of prostate cancer treatments result in the condition. It can occur in 90% of head and neck cancer cases.
But cancer isn’t the only cause. Lymphoedema can also be a genetic condition, which people are born with (primary lymphoedema), or it can be the result of injury, obesity, or infection (secondary lymphoedema).
There is no cure for lymphoedema so patients have manage their symptoms instead (Credit: Serenity Strull/ Getty Images)
Matt Hazledine, author and founder of Lymphoedema United, developed secondary lymphoedema in 2011 after suffering a severe episode of cellulitis, a potentially life-threatening bacterial infection that can quickly escalate to sepsis.
There is no cure for lymphoedema so patients have manage their symptoms instead (Credit: Serenity Strull/ Getty Images)
“The infection came out of the blue, in a very painful experience,” Hazledine says. “The by-product of that was a very severe swelling in my left leg that was diagnosed as lymphoedema.” His leg swelled so much it became around 60% bigger, gaining 8kg (17.6lbs) in extra weight. “At the age of 40, it was pretty life-changing,” he says.
Lymphoedema patients face enormous physical, psychological and socioeconomic consequences. The condition can be not only painful, but disfiguring and lead to a loss of mobility, independence, reduced productivity and depression. With no cure, treatment for the condition is largely palliative and requires meticulous daily management. However this is rarely implemented due to severe lack of available services, expertise, and a postcode lottery for treatment. In the US, access to treatment is patchy and health insurance companies offer cover that applies to few, if any of the treatments available.
“For many people, trying to access the basic level of care, is impossible,” says Friett. “Lymphoedema services [across the UK] are being shut down, patients are being ignored, and their condition gets worse every day because there isn’t enough support for them.”
Hazledine compares the initial years of trying to manage his lymphoedema to “wading through thick treacle in the fog”. He says some cancer survivors have told him “they wished the cancer had taken them, because they wake up every single morning with a reminder of their cancer journey, because their lymphoedema is staring them in the face”.
“They actually deem the lymphoedema to be more of a challenge than the cancer,” says Hazledine.
There are some clinicians who regard lymphoedema as an overlooked pandemic due to significant chronic public health problem is poses globally. There are comparatively few professionals specialised in its management, placing a substantial burden on health resources. Managing the condition is almost impossible for the majority of patients.
My left leg was 200% larger than my right. It was so painful and heavy – Amy Rivera
The condition remains underdiagnosed, underresearched, and underfunded in most healthcare systems. This is mainly due to a lack of awareness and understanding about the disease. The consequence of this is that patients can wait decades for a diagnosis, while their symptoms get progressively worse, to the point of disability.
“I couldn’t take care of it because I didn’t know what it was,” says Amy Rivera, who was born with primary lymphoedema. After 32 years of misdiagnosis, stigma, and isolation, Rivera finally found a specialist who was able to diagnose her with Milroy’s disease, a rare lymphatic disorder. The lymphoedema symptoms were so severe by this point that Rivera struggled in her daily life while completing her nursing degree.
“My left leg was 200% larger than my right. It was so painful and heavy,” she says. “I couldn’t wear skirts, I couldn’t wear my scrubs, [and] I couldn’t stand.” The condition meant that Rivera had to give up nursing and change profession, eventually founding a charity to raise awareness of the condition, Ninjas Fighting Lymphedema Foundation. She also now runs Rivera Hybrid Solutions, a company that offers training and equipment for managing lymphoedema symptoms.
Rivera says her own pain and symptoms were frequently dismissed and ignored by doctors for years and that a lack of awareness led to more damage. Her physicians mismanaged the condition and prescribed her diuretics medication, which led to kidney failure as a child, she says.
“I was gaslighted by a rude doctor who said ‘you’re going to be in a wheelchair by the time your 35, so you better get in what you can get in now, and enjoy your life as it is. It’s just swelling, there’s nothing we can do about it’,” she says.
Rivera spends six to seven hours a day managing the condition.
“Lymphoedema isn’t just swelling. It’s painful, it’s debilitating. It impacts every aspect of your life,” says Friett.
A Deadly Companion
Lymphoedema patients also face a high risk of developing recurrent cellulitis, an infection of the layers of skin below the surface and underlying tissue. It is a major cause of emergency department visits and can result in lengthy hospital stays. Patients often struggle to get a diagnosis, leading to frustration and delays that can make the condition worse.
“I was crying in agony, trying hard not to pass out. Because I knew it wouldn’t be good while I had a 41C (106F) temperature,” says Didi Okoh, a 2024 Paris Paralympian bronze medallist who suffers from primary lymphoedema. Okoh says she was repeatedly ignored by A&E doctors when she developed cellulitis twice.
“It was literally life or death. Twice I have been left, once for seven hours, and once for three hours, without any treatment, despite me having all the symptoms of cellulitis, and telling [the doctors] you need to put me on antibiotics now, before I go into sepsis,” she says. Each bout of cellulitis left her with irreversible tissue damage in her leg. “Every time I get an infection in that leg, it damages that leg. It resets to a bigger size, and I can’t get it down to its prior size.”
“If we treat lymphoedema properly, we reduce the incidence of cellulitis infections,” says Friett. “Cellulitis is one of the most common emergency admissions to a hospital.”
For example, in England the NHS spends around £178m ($225m) on hospital admissions due to lymphoedema complications, much of which is attributed to cellulitis infections. In the US, lymphoedema patients rack up around $270m (£213m) in hospital charges alone each annually.
Relatively little attention has been given to the lymphatic system in medical education (Credit: Serenity Strull/ Getty Images)
These costs could be prevented, if patients had proper treatment, say those pushing for better recognition of the condition. A study commissioned by the National Lymphoedema Partnership in the UK showed that with appropriate treatment, it is possible to achieve a 94% decrease in complications, and an 87% reduction in hospital admissions.
Lymphoedema: The Hidden Costs
- Up to 250 million people worldwide live with lymphoedema
- 35% of the US’s 3.5 million breast cancer patients develop lymphoedema
- 50% of Lymphoedema patients spend an average of $8,172 (£6,440) per hospital visit
- Lymphoedema patients spend an average of $8,172 (£6,440) per hospital visit
- Patients face being $3,325-$5,545 (£2,620-£4370) a year worse off due to losses in productivity
- The UK’s NHS spends £15.48m ($19.58m) a year on compression garments for lymphoedema
Despite playing such a vital role in our body, the lymphatic system is almost entirely overlooked in most medical education systems. A survey conducted in the US found that throughout an entire medical degree, less than 25 minutes was dedicated to the lymphatic system.
Combined with a severe lack of research and funding into finding treatment solutions, it has meant that lymphoedema has been largely overlooked compared to the impact it has on millions of patients’
“We are at least 100 years behind on research [into the lymphatic system],” says Kristiana Gordon, consultant physician and associate professor at St George’s University Hospital in London, which is the only teaching hospital in the UK to have a dedicated module covering the lymphatic system in its undergraduate medical degree.
“Even if the students aren’t interested in lymphoedema, at least they will have heard of and seen it, and know where to send the patients,” says Gordon.
Spiralling Costs
In the UK, there are only five physicians dedicated and specialised in lymphoedema across two centres, says Gordon. Patients often have to travel large distances to see a specialist physician as there are relatively few with the level of expertise needed. Gordon’s patients, for example, have travelled from as far as Scotland, Falkland Islands, and North America, because “they haven’t got anywhere to go”.
The lack of support and treatment available to lymphoedema patients results in staggering costs to both the patient and healthcare services. Some studies show that around 70% of lymphoedema patients do not receive the necessary treatment they need, leading to complications that require far more involved care. One study found that for every £1 ($1.3) spent on lymphoedema services, it saves the NHS £100($126). According to a global review, breast cancer patients who develop lymphoedema can spend up to $8,116 (£6,426) per year on a wide range of treatments.
Where to find support for Lymphoedema
For more resources and information on lymphoedema, you can visit Lymphoedema United, The Lymphatic Education and Research Network, The Lymphoedema Support Network and Ninjas Fighting Lymphedema Foundation.
In the US specifically, long-term cancer survivors with lymphoedema are left out of pocket by their condition with costs that are up to 112% higher than those without lymphoedema. The condition not only impacts their savings but their productivity.
Breast cancer patients suffering from lymphoedema face extra direct costs of up to $2,574 (£2,035) each year, and indirect costs of up to $5,545 (£4,384) per year. Those from a lower socioeconomic background are the most negatively impacted.
Yet despite this, lymphoedema services are largely underfunded, overlooked, and ignored. However, studies show that a lot of patients who receive proper care do very well. “Many people can live well with lymphoedema,” says Hazledine. “If they can get educated, once they have the right treatment plan, and the right support from a healthcare professional, early on, that can help shape their self-management routine.”
Hazledine says that when he was diagnosed in 2011, there was no information on where to go for help or ongoing care. “When I went to my [doctor], lymphoedema was unknown to them. He at the time didn’t know where to refer me for help. Unfortunately, that is the same story in 2024 – [doctors] still do not know enough about lymphoedema.”
Today, Okoh, Hazledine, and Rivera are able to effectively self-manage their condition and thrive while living with lymphoedema. But it took them years to get to this point.
Not wanting others to experience the same difficulties they did a decade ago, both Hazledine and Rivera founded their own organisations to help support lymphoedema patients.
“I wanted to short-cut that journey to finding the right management strategy and support for them,” says Hazledine. 13 years after receiving his own diagnosis he says: “You’re not alone, you can live well with lymphoedema.”
Access the article on BBC Future, here https://www.bbc.com/future/article/20241216-lymphoedema-the-hidden-pandemic-affecting-250-million
Mental Health Support – Lymphoedema NHS Wales
NB: Matt is investigating whether NHS England and Scotland provide this service. Please ask your GP or Lymphoedema Therapist for a referral, if and when needed.
Lymphoedema patients to benefit from online mental health support.
NHS Wales’ digital wellbeing service has teamed up with a pioneering clinic to help patients manage the mental health impacts of Lymphoedema and Lipalgia Syndrome.
The Lymphoedema Wales Clinical Network (LWCN) established a psychological support service – the only one of its kind in the UK – after patients spoke of the emotional challenges of living with these conditions.
Patients revealed how their physical symptoms were often accompanied by depression, anxiety and worries about appearance.
Support offered by the service’s two psychologists is now being complemented by direct referrals to SilverCloud® Wales, a suite of online, self-help courses based on Cognitive Behavioural Therapy (CBT).
Dr Jayne Williams, National Lymphoedema Consultant Psychologist for LWCN said: “This is an exciting time for us.
“We’re looking at different ways for people to access psychological therapies – SilverCloud being one of them. The aim is to provide timely, preventative support before people get to crisis point.
“As SilverCloud is online, it has the capacity to reach many more people than we could see face-to-face, and its flexibility means that it fits around busy work and family lives.
“Being able to offer something that patients can do in their own way, at their own pace is brilliant.”
NHS Wales online CBT project manager Fionnuala Clayton said the new referral pathway was inspired in part by feedback from a ‘Living Well with Lymphoedema’ event hosted by LWCN, where patients were asked what they would like from its emerging psychology service.
“Patients wanted to feel as though they were not alone and that they still had a healthy and happy life despite their condition,” said Fionnuala. “They wanted easy access to support for building resilience alongside help to help themselves.
“Coming away from the event, we knew a referral pathway would support many patients across Wales.”
Lipalgia Syndrome – also known as Lipoedema – is an abnormal build-up of adipose fatty tissue, usually in the lower half of the body, which more commonly affects women.
Lymphoedema is another incurable, long-term condition which develops due to a damaged or poorly-functioning lymphatic system. Damage can occur as a result of many factors including obesity, surgery, cancer treatment, infection or injury.
People who are sedentary are particularly vulnerable as the lymphatic system relies on movement to remain healthy and move the lymph fluid around the body. Symptoms include swollen and painful heavy limbs and a higher risk of skin infections and wounds.
Said Dr Williams: “These are conditions that people have to learn to live alongside forever, which can be incredibly difficult.
“They have to cope with swelling and pain, they may have to wear compression bandages or garments, carry out daily skin care routines and do lots of movement.
“We see lots of people with very low mood. There’s also a lot of anxiety around body image and intimacy.
“Feeling people are judging you, and perhaps not being able to find clothes or shoes that fit you, means your whole identity and your social confidence can be affected. You can feel more isolated and withdrawn.”
Around 25,000 people across Wales use LWCN services.
Local health board lymphoedema services can refer people to the psychology service within the National Lymphoedema Team, which is hosted by Swansea Bay University Health Board.
Dr Williams said several patients had been referred to SilverCloud’s Space for Positive Body Image programme after attending a body image workshop.
Other courses on offer include support for anxiety, depression and stress.
Anyone in Wales aged 16 or over can self-refer to SilverCloud, without seeing a GP and from the comfort of their own home.
Fionnuala Clayton added: “We’re delighted to onboard the Lymphoedema Wales Clinical Network. This has been a collaborative effort between services, working together to identify how best support patients living with Lipalgia Syndrome and Lymphoedema.”
For further information and support on Lymphoedema and Lipalgia Syndrome, visit https://lwcn.nhs.wales/
To self-refer to SilverCloud Wales, visit https://nhswales.silvercloudhealth.com/signup/
For further information about the lymphoedema services available in Wales, visit https://lymphoedemaunited.com/meet-the-experts/
Last chance to enter our Charity Golf Day 2025
Our fourth Lymphoedema United Charity Golf Day will be on 3rd July 2025, at The Forest of Arden near Birmingham. Forest of Arden Hotel & Country Club | Hotel Near Birmingham
In the previous three years, the golf day has raised a staggering £15,179 for the Lymphoedema Research Fund (managed by St George’s Hospital Charity).
Golfers, and their loved ones, affected by lymphoedema unite with others to share their story, play golf, enjoy delicious food, enter the unique Lymph United Putting Competition, and have the opportunity to win countless raffle and auction prizes.
We have secured two incredible speakers already and the support of several industry partners.
Every year, new friendships are made, and our regular golfers reunited.
There are limited places available, so REGISTER NOW for the 2025 Golf Day by emailing Matt at hello@lymphunited.com
More details on the website https://lymphoedemaunited.com/information/charity-golf-day/
Bitesize News
Available Now
Top Tip
January can provide a new start to reset and make plans to improve our lifestyle and work life balance. Build in self-care, self-love and self-management to your routine. It’s not selfish, it’s important to look after yourself before you look after others.
Lymphoedema Research Fund
Target: £250,000
Raised: £291,306*
Date: 31st December 2024
* from all sources, not just Lymphoedema United
Available Now
Top Tip
January can provide a new start to reset and make plans to improve our lifestyle and work life balance. Build in self-care, self-love and self-management to your routine. It’s not selfish, it’s important to look after yourself before you look after others.
Lymphoedema Research Fund
Target: £250,000
Raised: £291,306*
Date: 31st December 2024
* from all sources, not just Lymphoedema United
Helping you to LIVE BETTER with LYMPHOEDEMA
Medical Advice Disclaimer
DISCLAIMER: THIS WEBSITE DOES NOT PROVIDE MEDICAL ADVICE
All material on this website is for informational purposes only and is not a substitute for professional medical advice, diagnosis or treatment.
Always seek the advice of your physician or other qualified health care provider with any questions you may have regarding a medical condition or treatment and before undertaking a new health care regime and never disregard professional medical advice or delay in seeking it because of something you have read on this website.
Reliance on any information provided on this website, by our employees and others appearing on the website is solely at your own risk.
For the avoidance of any doubt, Matt Hazledine has lymphoedema and is not a medical professional.