LymphUnited eNewsletter

Volume 6
January 2023

LymphUnited eNewsletter

Volume 6
January 2023

Volume 6 – January 2023

Welcome to our sixth LymphUnited eNewsletter, which includes a variety of subjects which aim to share experiences and help you to live better with lymphoedema.

In this issue, I make no apologies for focusing on what’s available to help YOU!

We regularly hear the terminology Self-Management, or the softened versions Self-Care and Self-Love. Is it time to apply these to our own lives and invest in ourselves? In January 2023, we launch a new part to our website, the Meet the Experts – Health, Lifestyle and Wellbeing section.

This newsletter features various methods available to all of us to improve our wellbeing, from some wonderful human beings who have used their personal journeys with lymphoedema, to help others. We are proud to welcome them to our website and you’ll read more from them later.

Having lymphoedema can be a lonely place sometimes and I am passionate about uniting the lymphoedema community, both online and in person. Could you be involved in these projects?

I hope you find this interesting and informative. Most importantly, I hope there will be something that you find beneficial to improve your quality of life.
Ultimately, this newsletter is for your benefit. Therefore, I would welcome your feedback or any requests you have for future content.

Contact me at Hello@lymphunited.com.

Meet the Experts – Health, Lifestyle and Wellbeing

Living with lymphoedema can be a rollercoaster! Physical and mental ups and downs that can leave us tired, demoralised and desperately seeking new solutions to help us to feel better. The Lymphoedema United website contains a wealth of information and signposts you to many people, companies and experts.

We now move into a new phase of the website by introducing a variety of experts who provide services to improve our Health, Lifestyle and Wellbeing.

We regularly hear the terminology Self-Management, or the softened versions Self-Care and Self-Love. Is it time to apply these to our own lives and invest in ourselves? If so, visit our website, the new Meet the Experts – Health, Lifestyle and Wellbeing section.

I have either met in person, or online, all of these wonderful human beings who have used their personal journey with lymphoedema, to help others. We are proud to welcome them to our website and introduce you to them one by one: Karen Windsor – Sculpt & Change Therapies, Barbara Jackson – Balance with Babz and Amanda Sobey.

View my interviews with Karen, Babz and Amanda on our YouTube Channel.

Special Offer!
To support Lymphoedema United, each company has provided a special offer for our members, using their exclusive discount code. Read more from all three wonderful people about the services they provide to help people with lymphoedema…..

Karen ‘Kaz’ Windsor – Sculpt & Change Therapies

“I’m Kaz of Sculpt & Change Therapies. I was motivated to start this business in 2019 because I have several illnesses including Lymphoedema and Lipoedema. So, I thought, who better to help you than someone who is already on the same journey and can, perhaps, relate to your challenges.

The services I provide in my clinic include a combination of Reflexology with Lymphatic RLD and massage Fascia therapy, IASTM/Massage gun and in therapy Mindset mindfulness therapy. I’m also helping women and men all over the world, with my online Self Care Techniques and Mindset Management.

I have social media platforms with lots of free information about self-care and Mindfulness Mindset work and you’ll often find me collaborating with other sufferers or practitioners.

Special Offer to Members

Exclusively to members of Lymphoedema United members, I’m offering 10% off online or in clinic treatments for a prepaid course of 5 sessions. This limited offer closes on 31st March 2023. Visit my website for more information.

Interview Video

Please see the recorded interview with Kaz Windsor.

For more information, visit our website.

Barbara ‘Babz’ Jackson – Balance with Babz

“I’m Babz, an occupational therapist, lymphedema therapist, and certified yoga teacher. I host a ‘Living With Lymphedema’ virtual yoga wellness program to support the lymphedema community, inspired by my mother who has lymphedema.

This program runs three times per year, with the next one in April 2023, and they are split into chair and floor lymphatic yoga programs.

In this program you will learn how to complete self-manual lymph drainage, engage in lymphatic yoga, learn about compression garments, and many physical and mental health techniques to live successfully with lymphedema.

Special Offer for Members

I am pleased to offer members of Lymphoedema United 10% off (using their exclusive discount code) when signing up for my living with lymphedema program. Visit my website for more information (balancewithbabz.com).”

Interview Video

Please see the recorded interview with Babz Jackson.

For more information, visit our website.

Amanda Sobey

Since 2001, I have been battling an incurable illness known as Lymphedema in my right leg. When I was diagnosed, I was devastated to learn there was nothing I could do, besides wear compression and receive MLD (Manual Lymph Drainage).

For 16 years, I was hopeless, depressed, and frustrated. I tried everything you could think of (minus surgery) and was not seeing any improvement with my swelling. In 2016, I became so sick that I was bedridden for months, unable to walk or complete the simplest of tasks. I had the decision to make, try and overcome the “impossible” or succumb to it. Thankfully, I chose the latter.

Through my own personal trials of health and wellness, I have managed to significantly reduce my edema and improve my mental health through exercise and nutrition. I have made a total mind & body transformation and enjoy competing as an All-Natural Bodybuilder. Professionally, I am a Certified Personal Trainer, Certified Nutritionist, and Lymphie Coach. I specialize in helping others with Lymphedema, Lipoedema, Diabetes, Hypertension, Arthritis, Obesity, and other injuries. I love to help others easily and safely overcome their health struggles as I truly believe we are stronger together.

Special Offer for Members

Exclusive for members of Lymphoedema United, I am offering a FREE Group Workout (one-time only). Valid until: March 31, 2023

PLUS a:-

FREE 15-minute consultation: www.amandasobey.com
FREE Lymphie Starter Pack: www.amandasobey.com

Interview Video
Please see the recorded interview with Amanda Sobey.

For more information, visit Amanda’s info on our website.

An even HOTTER discount!

Hotter has increased the discount for our members to 20% off all products and FREE delivery!

Hotter create comfortable footwear with up to 40 fitting and size combinations to provide the perfect fit.

Use your member’s discount code (LymphUtd) to save 20% on all Hotter products. Visit the website for more information.

You are NOT alone!

You are NOT alone! Meet some of our members who have shared their experiences and tips living with lymphoedema, with the hope it helps others in the same situation.
So far, 17 of our wonderful members, from all over the world, have shared their lymphoedema stories to provide helpful reassurance that we are not alone.
There are people out there who are ready to unite with others via email, social media and in person, read their stories to find out more.

Visit the Meet the Members section of our website, to see what I mean.

Would you be willing to share your journey? If so, email me at hello@lymphunited.com

New Video Interview Series – Meet the…
…Experts, Suppliers, Charities and Members.

In a series of new videos, I interview key people from the lymphoedema community, to provide trusted information and helpful tips.

So far, interviews have taken place with William Repicci, CEO LE&RN, Sally Kay, Garry Cooper-Stanton, LimbO, Compression Therapy UK, Angela Marquez, Amanda Sobey, Babz Jackson and Kaz Windsor, with many more planned for 2023.

View the interviews on our website.

Who would you like me to interview? email me at hello@lymphunited.com

Matt’s Self-Management Videos

I have recorded a series of videos sharing my own self-management routine and tips on how you could live better with lymphoedema.

View the videos on our website.

Free Prize Draw Winners

In November 2022, we ran a Free Prize Draw with Sock Shop. Six lucky members of Lymphoedema United, who entered the draw, were drawn at random on 1st December 2022 and each won a pack of 3 Sock Shop IOMI/Gentle Grip socks.

The six winners were Jennifer Zivanovic, Janine Broughton, Keith Curryer, Dave Reason, Rob Williams and Jan Bell, who received their socks in December just in time for the cold snap! Congratulations to all our winners.

For more information about the Sock Shop range, visit our website and don’t forget to use your exclusive Member’s Discount Code ‘LymphUtd’ to get money off your purchase.

In December 2022, we ran a Free Prize Draw with SIGVARIS Group Britain. One lucky member of Lymphoedema United, who entered the draw, was drawn at random on 4th January 2023 and won a Rolly and Cone donning and doffing device.

The winner has been notified and hasn’t yet responded. If your initials are ‘D.E.’, please check your email inbox and spam folder to see the email from us. If you have been notified as the winner, please contact matt@lymphunited.com asap to receive your prize. Many congratulations!

For more information about the SIGVARIS Group Britain range, visit our website and don’t forget to use your exclusive Member’s Discount Code ‘LymphUtd’ to get money off your purchase.

Donations to Lymphoedema Charities

One of my core objectives when I set up Lymphoedema United, was to raise money for selected charities. I pledged that 25% of annual pre-tax profits would be donated and I am grateful to be in a position whereby both my book and website have made a small profit in the first year!

My book, ‘How to Live Better with Lymphoedema – Meet the Experts’ made an annual pre-tax profit of £703 and I have donated 25%, £176 to the Lymphoedema Research Fund.

My website Lymphoedema United made a small profit of £1,536 and I have donated 25%, £384 to the British Lymphology Society (BLS).

Our first Charity Golf Day in June 2022 generated a profit of £3,300, 100% of which was donated to the Lymphoedema Research Fund.

Therefore, in our first year we have donated a fairly impressive £3,860 to Lymphoedema charities. Hopefully, in 2023 we will beat this figure and donate funds to other deserving charities.

Thank you to all of you who have supported my projects. If you are interested to find out more, visit our website:

https://lymphoedemaunited.com/book/

https://lymphoedemaunited.com/information/charity-golf-and-spa-day/

To find out more about our preferred charities or to make a donation directly to them visit our website.

The ILF Needs You!

As reported in the October 2022 Newsletter, the next annual conference for the International Lymphoedema Framework (ILF) is being held in Nottingham, UK, from 13-15 June 2023.

The ILF is very keen to invite people living with lymphoedema to attend the new ‘Patient Day’ on 15th June. This promises to feature expert speakers providing valuable information to help us to better understand lymphoedema and provide guidance, solutions and techniques to self-manage our lifelong condition. The ILF also recognises that it is vital to hear the patient’s voice throughout the conference, which is extremely important and bridges the gap between the Health Care Professionals and people living with lymphoedema. It is very exciting!

This is where the ILF needs your help!

As a member of the ILF Conference Advisory Board, I have been given the task of inviting members of Lymphoedema United to submit their questions for the Q&A session with Professor Peter Mortimer. This may well be one of his last appearances at the ILF, as he has been talking about retirement for many years now but doesn’t seem to have got there yet!

So, here is your opportunity to send me your question(s) for me to forward to the ILF Conference Advisory Board for consideration. As you may expect, there is a time limit for the Q&A session, so not all questions will be asked but it’s worth trying!

Please email your questions to hello@lymphunited.com by 28th February 2023, adding the name of the person you would like me to put your question to.

There will be more information about the ILF in future newsletters and email bulletins, including how you are able to obtain tickets to attend the conference patient day.

For more information about Professor Mortimer and the ILF, visit our website

https://lymphoedemaunited.com/meet-the-experts/professor-peter-mortimer/

https://lymphoedemaunited.com/international-lymphoedema-framework/

Bitesize News

Available Now

Top Tip

 

It’s the start of a new year and time to set some motivational goals! Eg: I want to reduce my limb size, so I can fit into those jeans/trousers/blouse/jacket for that ‘special’ occasion this year. Sticking to my Self-Care/Management plan will help me achieve this: Compression, Skin Care, Massage and maintaining a healthy weight.

 

 

Lymphoedema Research Fund

Target: £250,000

Raised: £143,533*

Date: 31st December 2022

* from all sources not just Lymphoedema United

 

Available Now

Top Tip

 

Top Tip:- It’s the start of a new year and time to set some motivational goals! I want to reduce my limb size, so I can fit into those jeans/trousers/blouse/jacket for that ‘special’ occasion this year.

 

 

Lymphoedema Research Fund

Target: £250,000

Raised: £143,533

Date: 31st December 2022

Follow us on:

www.lymphoedemaunited.com

Helping you to LIVE BETTER with LYMPHOEDEMA

How to LIVE BETTER with LYMPHOEDEMA

The new book by Matt Hazledine is available to buy NOW!

25% of pre-tax profits from book sales will be donated to the lymphoedema Research Fund.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Become a member

Sign up as a Free Member to receive Exclusive Benefits, including access to Articles and Videos from the Experts, a Unique Discount Code from the Suppliers, Members’ Offers and a Quarterly eNewsletter with the latest news from the lymphoedema community.

How to LIVE BETTER with LYMPHOEDEMA

The new book by Matt Hazledine is available to buy NOW!

25% of pre-tax profits from book sales will be donated to the lymphoedema Research Fund.

 

 

 

 

 

 

 

 

Become a member

Sign up as a Free Member to receive Exclusive Benefits, including access to Articles and Videos from the Experts, a Unique Discount Code from the Suppliers, Members’ Offers and a Quarterly eNewsletter with the latest news from the lymphoedema community.

Medical Advice Disclaimer

DISCLAIMER: THIS WEBSITE DOES NOT PROVIDE MEDICAL ADVICE

All material on this website is for informational purposes only and is not a substitute for professional medical advice, diagnosis or treatment.

Always seek the advice of your physician or other qualified health care provider with any questions you may have regarding a medical condition or treatment and before undertaking a new health care regime and never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Reliance on any information provided on this website, by our employees and others appearing on the website is solely at your own risk.

For the avoidance of any doubt, Matt Hazledine has lymphoedema and is not a medical professional.