Where to get help

When first diagnosed with lymphoedema, sufferers often find it can be an incredibly emotional time. Feelings of anger, despair, anxiety, loneliness and depression can be common. This, combined with discomfort and pain, can lead to a lack of confidence and reduced self-esteem.

Lymphoedema isn’t perceived to be a life-threatening disease. Because of lack of awareness of the condition, it can sometimes be a challenge to get information and support from your GP and, therefore, difficult to be referred to an appropriate lymphoedema specialist or a local therapist.

Of course, many people turn to Google to research the condition, which results in some terrifying images. A reliable and factual source of information is the NHS website. In addition, there are several other trusted professional organisations and charities that can help you to find a local lymphoedema therapist or clinic.

For most of us, the best option would be to be referred as an NHS patient. Alternatively, there are many therapists who provide their service to private patients. Where do we find these qualified and experienced lymphoedema therapists?

The British Lymphology Society (BLS), the Lymphoedema Support Network (LSN) and MLD UK have a directory which you can access, either on their website or by phoning their helpline. This means they will only give you details of a therapist who is a member of these organisations and is listed on their Directory.

For further information, click “Meet the Organisations”.

Lymphoedema is not particularly well-known in some sectors of the medical profession and, as such, isn’t always diagnosed correctly initially. Knowledge is power. If you are showing symptoms of lymphoedema, it pays to research the disease using reputable sources (listed on this website) and if you think that they apply to you, explain this to your GP and ask for a referral to a lymphoedema specialist.

To find out more from our panel of medical professionals, click “Meet the Experts”.

Living with lymphoedema can result in the feeling of isolation, with no one to talk to who truly understands what you are going through. This can have a detrimental effect on your mental health and wellbeing. It’s good to talk and there are several online Support Groups available on Facebook for people with lymphoedema. These online groups enable you to share your experiences, tips and chat with people who are in the same boat.

Remember, you are not alone.

We will be launching an online Lymphoedema Support Group, via Facebook, very soon under the name of LymphUnited.