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You are NOT alone! – Meet-ups

 

Do you have lymphoedema and want to connect with others?

Unite with us for a series of supportive and engaging face-to-face and virtual Meet-ups across the UK and the World!

Living with lymphoedema can be lonely and you might find it helpful to share experiences and challenges with others who have this lifelong condition. In addition, swapping tips and solutions can help you and others to live better with lymphoedema. You are NOT alone!

See below for the dates and locations of our Virtual and Face-to-face Meet-ups.

Face-to-Face Meet-ups

We are inviting people with lymphoedema to join us for tea/coffee at lunchtime, with the intention of facilitating introductions to other locals with lymphoedema.

To register email Matt – hello@lymphunited.com

Please include – your name, home town and which Meet-up you’d like to join, from the list below.

Members of Lymphoedema United Only!

You are NOT alone!

Please note: These are not registered support groups.

You are NOT alone –
Face-to-Face Meet-ups

St George’s Hospital, Tooting, London
on 6th November 2025

To register email hello@lymphunited.com 

You are NOT alone –
Face-to-Face Meet-ups

Birmingham Mosley Rugby Club
on 21st November 2025

To register email hello@lymphunited.com 

You are NOT alone –
Face-to-Face Meet-ups

Accelerate CIC, Hackney, London E8
on 11th December 2025

To register email hello@lymphunited.com 

Virtual Meet-ups

Meet Matt Hazledine and other individuals with lymphoedema via MS teams during 2025. These online meet-ups provide an opportunity to connect with others in a relaxed and supportive online setting. This informal gathering is designed to help you meet and engage with others who share similar experiences.

To register email Matt – hello@lymphunited.com

Please include – your name, home town and which Meet-up you’d like to join, from the list below.

Members of Lymphoedema United Only!

You are NOT alone!

Please note: These are not registered support groups.

You are NOT alone! – Virtual Meet-ups

Northern Ireland: 6pm on 18th September 2025 – Online via Teams

To register email hello@lymphunited.com 

You are NOT alone! – Virtual Meet-ups

Republic of Ireland: 6pm on 25th September 2025 – Online via Teams

To register email hello@lymphunited.com

You are NOT alone! – Virtual

Area and Date to be advised soon

To register email hello@lymphunited.com 

Regional Roadshows

We welcome people with lymphoedema and their partner, to unite with others at our Regional Roadshows. Experienced and qualified speakers from the healthcare profession will provide trusted information on self-care techniques and suppliers will demonstrate and exhibit new products, all with the intention to help you to live better with lymphoedema.

To register email Matt – hello@lymphunited.com

Please include – your name, home town and which Meet-up you’d like to join, from the list below.

Members of Lymphoedema United Only!

You are NOT alone!

Please note: These are not registered support groups.

You are NOT alone! –
Regional Roadshows

Southeast England
Maidstone, Kent Postponed
New date coming soon

To register email hello@lymphunited.com

You are NOT alone! –
Regional Roadshows

North West England
Date – Tuesday 19th May 2026

To register email hello@lymphunited.com 

You are NOT alone! –
Regional Roadshows

East Anglia
Date TBC

To register email hello@lymphunited.com 

Charity Golf Days

Do you, or a loved one, have Lymphoedema and play golf?  We unite golfers with lymphoedema to share experiences and tips, have a great day out and raise money for lymphoedema charities.

Click here for further information about our next Charity Golf Day

Hellidon Lakes, Daventry

8th June 2022 – Raised £3,300

The Belfry, Sutton Coldfield

8th June 2023 – Raised £6,070

The Belfry, Sutton Coldfield

6th June 2024 – Raised £5,089

Forest of Arden Hotel & Country Club

3rd July 2025 – Raised £9,117

Forest of Arden Hotel & Country Club

4th June 2026 – Raised £8,616

Belton Woods Hotel, Spa & Golf Resort, Grantham

3rd June 2027

To register email hello@lymphunited.com

Events and Conferences

Matt Hazledine has been a speaker or attended the following lymphoedema events and conferences.

BLS Conference 2021

How to Live Better with Lymphoedema

Virtual Presentation

October 2021

BLS Conference 2022

Understanding the Patient’s Agenda

Patient Workshops x 5

October 2022

ILF Conference 2023

Co-Chair at the Patient’s Day

Exhibitor

June 2023

BLS Conference 2023

The importance of patient involvement in shaping NHS services

Patient Workshops x 2 and Exhibitor

October 2023

Lymphoedema Wales Patient Conference 2024

Presentation ‘My journey to wellbeing’

Exhibitor

March 2024

Books

Available to purchase via this website or Amazon. Profits used to support lymphoedema charities around the world.

How to Live Better with Lymphoedema - Meet the Experts by Matt Hazledine

Launched 1.10.2021

You are not alone - Lymphoedema stories from around the world compiled by Amy Rivera & Matt Hazledine

Launched Date 1.10.2023

How to LIVE BETTER with LYMPHOEDEMA

The new book by Matt Hazledine is available to buy NOW!

25% of pre-tax profits from book sales will be donated to the lymphoedema Research Fund.

Lymphoedema United - You are NOT alone!

Lymphoedema Stories from around the world - Volume 1

34 guests from 14 countries share their story, experiences and top tips.
Supporting Lymphoedema Charities

 

 

 

 

 

 

 

 

 

 

 

Become a member

Sign up as a Free Member to receive Exclusive Benefits, including access to Articles and Videos from the Experts, a Unique Discount Code from the Suppliers, Members’ Offers and a Quarterly eNewsletter with the latest news from the lymphoedema community.

 

 

 

 

 

 

How to LIVE BETTER with LYMPHOEDEMA

The new book by Matt Hazledine is available to buy NOW!

25% of pre-tax profits from book sales will be donated to the lymphoedema Research Fund.

Lymphoedema United - You are NOT alone!

Lymphoedema Stories from around the world - Volume 1

34 guests from 14 countries share their story, experiences and top tips. 

Supporting Lymphoedema charities

 

 

 

 

Become a member

Sign up as a Free Member to receive Exclusive Benefits, including access to Articles and Videos from the Experts, a Unique Discount Code from the Suppliers, Members’ Offers and a Quarterly eNewsletter with the latest news from the lymphoedema community.

 

 

 

 

Medical Advice Disclaimer

DISCLAIMER: THIS WEBSITE DOES NOT PROVIDE MEDICAL ADVICE

All material on this website is for informational purposes only and is not a substitute for professional medical advice, diagnosis or treatment.

Always seek the advice of your physician or other qualified health care provider with any questions you may have regarding a medical condition or treatment and before undertaking a new health care regime and never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Reliance on any information provided on this website, by our employees and others appearing on the website is solely at your own risk.

For the avoidance of any doubt, Matt Hazledine has lymphoedema and is not a medical professional.